The Philadelphia Ostomy Association
 An Associated Support Group of the United Ostomy Associations of America
and Abington Ostomy Support Group
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                    Email Address:
                  
philaost@hotmail.com
             
 
            Mailing Address:
           
The Philadelphia Ostomy Association
            P.O. Box 14343 
           Philadelphia, PA 19115

             
                       

       NEW HELPLINE NUMBER:

         267-231-4517

                       

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UOAA BROCHURE

AND POA BROCHURE

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Will you get/stay married? Have
babies?
People with bowel and urinary diver-
sions date, get engaged, get married,
and have babies (even twins), all the
time and everywhere. Your ostomy
will probably seem bigger and more
important to you than to anyone else,
including your boyfriend, girlfriend,
fiancé, partner, spouse, children or
grandchildren!
Will you easily bathe, go swim-
ming? Bend over, participate in
the exercise and sports you enjoy?
Yes, yes, yes and yes! With a se-
curely attached pouching system you
can shower, take a bath (even a hot
tub), swim, surf, camp out, climb
mountains, bike, jog or play golf and
tennis. People with bowel and urinary
diversions are office workers, teach-
ers, salesmen, police and firemen,
carpenters, marathon runners, box-
ers, and airline pilots. You name it,
people with an ostomy can do it.
Want to live a full life? Go out and do
it, forgetting that little addition to your
abdomen that brings order out of a
disorder that could have ruined your
life ... or ended it. No one need know
about your ostomy surgery unless
you tell them. But perhaps if you DID
tell people about yourself, then
maybe there would be fewer people
afraid of this life-saving surgery!
What is the United Ostomy Associations
of America or UOAA?
The UOAA is an association of affiliated ostomy
support groups throughout the United States. It
is dedicated to the complete rehabilitation of all
people with an ostomy and those with continent
diversions. It actively advocates on behalf of all
with an ostomy, helps in the formation of new
groups, and provides for the exchange and dis-
semination of information through its website,
www.ostomy.org,
social media, its quarterly
magazine
The Phoenix,
and its four surgery-
specific
New Patient Guides.
If you wish to
support the activities of UOAA, donations can be
made at:
http://www.ostomy.org/donation.shtml
“The
services provided by the local ostomy
support groups affiliated with UOAA are
most beneficial in helping ostomy patients
accept and manage their new urinary or
bowel diversion.”
Dr. David E. Beck, M.D. FACS, FASCRS,
Past President, American Society of
Colon and Rectal Surgeons
Margaret T. Goldberg, MSN, RN, CWOCN
Past President, WOCN Society
LOCAL SUPPORT GROUP INFORMATION
The Philadelphia Ostomy Association
P.O.Box 14343
Philadelphia, PA 19115
Phone: 267-761-6028
SO YOU
HAVE - OR
WILL HAVE
AN OSTOMY
Don’t feel like this
Published by UOAA
P.O. Box 512
Northfield, MN 55057
800-826-0826
Away
Go
!
 
Yes, you’ve heard that people get
along just fine with only one of their
eyes, or one of their lungs, or one of
their kidneys. But you also know
that you have only one intestine and
only one bladder, and that leaves
you feeling awfully empty, both
physically and emotionally.
And you think no other people go
around minus part of their intestinal
tracts, or minus their bladders, with
the ends of their intestines sticking
out through their abdominal walls.
Well, you are wrong! There are nearly
three quarters of a million people in the
US who have an ostomy; people who
have had surgery to remove all or part
of their colons or bladders. There is
even a national association, the United
Ostomy Associations of America with
over 350 local affiliated support groups
that are organized by volunteers who
provide peer support and counseling.
UOAA has a toll free telephone num-
ber, 800-826-0826 and an educational,
interactive website,
www.ostomy.org
Why haven’t you met any of these
folks who have an ostomy?
Well, maybe you have! You just did not
recognize them because an ostomy
doesn't show. It can be kept secret if
you wish. Why, maybe some of your
best friends, office associates or
neighbors have an ostomy ... you never
can tell.
People facing ostomy surgery have
many quality-of-life questions like:
Will you bulge? Smell? Make noises? Will
you feel waste leaving your body? Will you
be a captive of the toilet? Will you starve?
Be a social outcast? Get/stay married?
Have babies? Easily bathe, go swimming,
bend over?
OK, let’s look at what you can expect:
Will you bulge?
Remember, without part of the intestine or
bladder, and its contents, you should have
a flatter tummy than before. You can
expect to wear, with little exception, what
you wore before surgery ... and this in-
cludes tight clothing and bathing suits.
Will you smell?
Today, thanks to modern odor proof
pouching systems, you can walk into an
ostomy support group meeting and not
smell anything that is foul or offensive.
And, for those with an ileostomy or
colostomy who are concerned about odor
when emptying their pouch, there are in-
pouch deodorants that can be used to
eliminate any waste odors that may exist.
Will you make noises?
Everyone produces gas, especially if they
are an air-swallower. But intestinal sounds
that occur from time to time are no differ-
ent than a gurgling tummy, and quite often
your clothing will muffle any sounds.
Will you feel the waste discharges?
For those with a colostomy or ileostomy
there might be a slight pressure when
waste leaves your body, but understand
that the intestines have no nerve endings,
so there will be no unpleasant sensations.
Those with a urostomy will probably be
unaware of any kidney drainage.
Will you be a captive of the toilet?
Immediately post-op you will spend more
time in the bathroom than you will after
your body recovers from surgery. Every
person is different, but on average those
with an ileostomy or urostomy may empty
their pouches 4 to 6 times a day; a little
less if you have a colostomy. The average
wear time between pouch system
changes is 3 to 5 days and the changing
process should take less than 30 minutes.
Will you starve?
Not if you follow doctor’s orders at each
stage of your post-op adjustment. There is
no such thing as an “ostomy diet”. Some
people with an ostomy will be able to eat
and tolerate anything; others may find diffi-
culty with some foods. Each person is an
individual and must determine, by trial,
what is best for them. A good practice for
all is to drink plenty of water.
Will you be a social outcast?
Have you met anyone who has an ostomy
and is a social outcast? Why should you be
the first? Only your attitude and self image
will effect how you are treated. No confi-
dent person is an outcast.

 

 

 

 

POA BROCHURE